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Consumer Health Data Privacy Policy

Effective Date: October 1, 2026

How we handle health-related information from our pre-screen, and your rights over it.

On this page

  1. What this policy covers
  2. Consumer health data we collect
  3. Where it comes from
  4. Why we collect and use it
  5. Who we share it with
  6. We do not sell consumer health data
  7. Your rights
  8. How to use your rights and appeal
  9. Contact us

1. What this policy covers

This policy explains how InvestigatorX collects, uses and shares consumer health data through this website, as required by laws such as the Washington My Health My Data Act and Nevada and Connecticut consumer health data laws. It adds to our Privacy Policy, which covers all personal information. "Consumer health data" means personal information that is linked or reasonably linkable to you and identifies your past, present or future physical or mental health.

2. Consumer health data we collect

  • Pre-screen answers: age range, BMI range, conditions you select (such as type 2 diabetes, high blood pressure, sleep apnea, knee pain or arthritis, fatty liver or heart disease) and whether you take a weight-loss medicine now.
  • Health details you choose to write in a message.
  • The fact that you, or someone you care for, are interested in obesity or metabolic clinical studies, and whether you were referred to a research site.

The BMI calculator does not collect data: it runs in your browser and nothing you type into it is sent to us.

3. Where it comes from

From you, when you send our pre-screen or contact form, and from your doctor or clinician, if they refer you with your permission.

4. Why we collect and use it

  • To identify potential clinical research opportunities, and to contact you about potential matches, with your consent.
  • To refer you to a named research site, only when you authorize that referral.
  • To let your referring doctor know how the referral went, only with your consent.
  • To keep records of referrals and consents, and to meet legal obligations.
  • To prepare aggregated, de-identified counts that do not identify anyone.

5. Who we share it with

  • The named research site you authorize a referral to.
  • Your referring doctor, with your consent.
  • Service providers that host the website, deliver forms and email, and provide our business software, under contracts that limit their use of it.
  • Authorities or others when required by law.

6. We do not sell consumer health data

InvestigatorX does not sell consumer health data, and does not use it for advertising or geofencing.

7. Your rights

  • Confirm whether we collect, share or sell your consumer health data, and get a copy of it.
  • Get a list of the third parties and affiliates we have shared it with.
  • Withdraw your consent to our collecting or sharing it.
  • Have it deleted, including by the parties we shared it with on our behalf.
  • Appeal if we decline your request.

8. How to use your rights and appeal

Send our privacy request form and choose the request you want to make. We will confirm your identity, then respond within 45 days; if we need more time where the law allows, we will tell you why. We will not treat you differently for using your rights.

If we decline your request, you can appeal by replying to our decision or by sending the form with "Appeal a decision". We will respond in writing within 45 days. If your appeal is denied, you may contact the attorney general of your state; Washington residents may contact the Washington State Attorney General's Office.

9. Contact us

You can also use our privacy request form.

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Arizona Clinical Trial Referral Network

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InvestigatorX is a clinical research referral and pre-screening service. InvestigatorX does not provide medical advice, diagnose medical conditions, determine final clinical-trial eligibility, or replace your healthcare provider. Participation in clinical research is voluntary. Eligibility and enrollment decisions are made by the research site conducting the study.

Completing a pre-screen does not enroll you in a clinical trial. Pre-screen information is shared with a research site only when you give permission for a referral to that named site. See our Privacy Policy and Consumer Health Data Privacy Policy. We do not sell personal information.

Study-specific recruitment materials are used in accordance with applicable study and research-site approval requirements, including Institutional Review Board (IRB) review where required. Photos, example screens and study names on this website are for illustration only and do not describe a specific study.

If you think you have a medical emergency, call 911.

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